Wisdom After Death

It’s been a rough go lately. On Easter Sunday I got a call from my uncle that my grandma suffered a massive stroke. There was no change in the first 24 hours, so my dad and I took the first flight out to see Grandma up north. After sitting by her hospital bedside off and on for three days, Grandma passed away. As hard as it was, I’m so thankful I had those finally few days with her. I’ve never been with someone while they died, let alone held their hand as they slipped away. Up to that point, it was evident that she was aware that we were in the room with her, but she still had no way to communicate with us. Regardless, I told her over and over how much I loved her and that I knew how much she loved me. Also, I thanked her for always being my cheerleader, and being the only one who believed in me when I decided to go back to school to finish my second degree.

Grandma was a tough lady, and the head of a very dysfunctional family. She pushed her family hard, and didn’t sugar coat things for anyone. She reminds me a bit of an older Martha Stewart to be honest. A lot of people in my paternal family don’t get along, and pretty much every sibling (Aunts/Uncles) believes that the other one is wrong on any given topic. A lot of them say Grandma was to blame for that, but I’d say they all played an equal role in their chosen relationships with one another. Now that Grandma is gone, I think it will be fairly obvious either way. As for me, I’ve always chosen to get along with everyone in the family, because frankly, I have no reason not to. And beneath the rough exterior, Grandma was good to me, sometimes more so than to others. But I digress.

While all this was going on, the backdrop for family drama was already on full display. The past few months I’ve had my hands full with ridiculous amounts of unprovoked cattiness and cruelty, and while I was away saying my goodbyes to Grandma, it reached a point of no return. Apparently, there are just certain people in the world who will never be happy with what they have, and will always want more. They feel entitled to things they haven’t earned or that belong to others, and they view people  as possessions. I don’t understand these people, and it pangs me to be repetitively exposed to these irrational, undeserved behaviors. Grandma wasn’t blind to them, and she’d be kicking in her grave to know it was going on. I asked myself what she would tell me to do, and it was the same thing that someone else said, “stop covering for them, just so they can save face in front of family and friends” and “just accept that they are shallow and don’t care about anything that doesn’t benefit them”.

I wish I was as brave and strong as my Grandma was, and that I wasn’t so affected by other people’s ugliness towards others. Even though I feel all alone in this now, I know Grandma is still cheering me on. As I continue to mourn her passing, I know that Grandma’s guidance will find it’s way into my thoughts, no doubt echoing her words of the kind of life she felt I deserved. Thanks Grandma . . . thank you for always sticking up for me and loving me just the way I am.

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2013 Word of the Year

I realize that February is more than half over, but I figure it’s better to post about my 2013 Word of the Year late than not at all. Much to my dismay, this year’s WOTY didn’t find me until the beginning of February with 1/12 of the year already gone. I started participating in WOTY after my friend Shai started the tradition in 2008. I’ve always thought the practice helps me to stay focused in this crazy little life of mine.

I tend to bounce around a lot on the Interwebs, so tracking down my past WOTY has been no easy task. I thought I better put a list of them together once and for all before I forget the past years all together. The list was composed using a combination of blog archives/comments, old journals entries, and my aging memory.

2008: Evolve
2009: ? Possibly 2013WOTY
2010: Believe
2011: Achieve/Learn
2012: Survive

That brings us to my WOTY for 2013 – Strength. After a month of coming up blank, the word suddenly seemed so obvious to me at the beginning of February (it even inspired today’s photo for my Project 365). Autumn of 2011 was the beginning of a very rough 1.5 yrs for me (hence the 2012 WOTY Survive). There were more days than I care to count when I didn’t think I was going to make it through the year in one piece. Somehow, I did, and I’d be lying if I said I wasn’t proud of myself. I took a set of incredibly difficult circumstances (i.e. health, work) and made it out alive.

Though my health has continued to suffer, at least I no longer have to worry about my former job exacerbating one of my health conditions. As I reflected on my current life circumstances at the end of 2012, I decided I can look at my situation as a glass half full or a glass half empty. Most days I manage to find the silver linings, though it is rarely easy. As I navigate the waters trying to find balance and acceptance in my ‘new’ life, I thought it was important to give myself credit for finding a bit of peace in my situation.  By literally surviving 2012, I learned that I am a lot stronger than I thought possible. That’s where my 2013 WOTY Strength comes from. Not only do I feel it’s important to remember how strong I was over the past year and a half, I think it’s even more important to remind myself each day (especially on the hard ones) that the strength is still within me to draw from when I need to.

I know putting this in to practice is easier said than done. That’s why Strength was such an obvious choice for my WOTY. Not only will this post make me accountable for focusing on that this year, but it gives you kiddies permission to call me on it when I’m having a rough day. Sounds like a win-win to me :)

Bad Company

I don’t understand people that obsess over things that don’t belong to them. One such group of people being spammers. I have barely relaunched R&U headquarters, and already it is flooded with spammers, unwanted bots, and spiders. I find it incredibly annoying when bots flat out ignore robots.txt files. Personally, if I were in the business of using spiders to index pages, I would want my web crawling to be reputable (i.e. don’t index files specified in robotos.txt).

Even more bothersome than uncooperative site indexers are the spammers. Do you really have nothing better to do than spam personal blogs that the majority of the world will never see? Or how about their cousins, the crackers?  What is the appeal of trying to hack into a site (again that the majority of the world will never see) that is of complete insignificance in the world wide web?

A spammer with nothing better to do.

Ban this IP

In the past four days, there were 33+ login attempts by such a character pictured here. I have no doubt these attempts will continue, as some asshats apparently have no life. Their activity might make a little more sense if I ran a high profile blog that was interested in reaching the masses, but my blog couldn’t be further from such a site.

That said, I just wanted to give a heads up to the select few whose online presence is desired here at R&U. I have taken measures to reaffirm my position on what sort of visitors are welcome here, which includes multiple IP blocks and a more detailed robots.txt file for undesired site indexers. If you are located in certain parts of the country or world that have been problematic for me in the past, this may apply to you. If you are part of my inner circle on the Interwebs and are experiencing problems with accessing or navigating my site, give me a holler via the contact form, so I can note your IP address.

I apologize for any inconvenience this may cause visitors, but until the rest of the kids learn some manners it is a necessary precaution to keep things running smoothly here at R&U headquarters. Thank you for your cooperation!

Between the Covers

Books. I love ‘em. Not just for reading, but for the books themselves. The smell of books, especially glossy paged books, bring me a certain amount of comfort (Admit it, you thought I was talking about a different kind of covers didn’t you? :P ). While a love for books and reading is good for many obvious reasons, it is especially good for someone in my position. That is, someone whose health conditions greatly limit their daily activity. Man can explore the world for free  as long as he stays between the covers. :)

If we are friends on Goodreads, then you know that I’m currently reading a number of books. Fall of Giants is not my typical read. The number of pages and tiny text in the paperback edition make this book nothing short of intimidating to someone with ADD. My sister had passed it onto me, and mostly I just stared at it up until I saw it on my bestie’s to-read list. When I suggested we read it together, I knew it was the only way I would stay motivated enough to get through it. I am now 60% through the 985 pages, and surprisingly invested in some of the characters. If you enjoy historical fiction (I usually don’t) and worldly issues, you may very well enjoy this first book in The Century Trilogy.

On a recent outing to the bookstore, I also picked up a couple of books for my new book group. I am a devotee of epistolary literature. Unfortunately, it can be difficult to find good epistolary novels, especially in the adult fiction genre. That’s why Lucy in the Sky and Dash and Lily’s Book of Dares  are both from the YA genre, where there is a significantly greater variety of epistolary books.

Lucy in the Sky has yet to live up to it’s sister title Go Ask Alice, which was the sole purpose of my selecting the title. I read GAA when I was in high school and absolutely loved it. I thought the two stories might be comparable beyond their epistolary nature as the cover suggested, but so far I just want swat the diarist across the forehead! The diarist in GAA was very authentic in comparison to LITS, whose diarist seems to know few words beyond “like”. The thoughts and dialog are way too ‘Valley girl’ for me and make me cringe a little. There has been nothing the former high schooler in me can relate to with the diarist of LITS.

Dash and Lily’s Book of Dares is a little easier to swallow thus far. While the young protagonist is similarly naive, she is a bit more quirky which makes her character more believable. The dares that her and Dash pass back and fourth in a red notebook resonate with me on a personal level, being a little goofy myself.

One more book I became aware of through my love for Lewis Carroll has yet to be cracked pending completion of other current reads. Splintered is a new twist on the of Alice books, introducing Alyssa as an ancestor of Alice Liddell. In order to save her family from the madness that has been passed down to generations of of women, Alyssa must uncover the Wonderland she had always believed to be a tale of fiction. As a huge fan of the Alice books, I couldn’t resist picking up this YA Fantasy read.

What about you? What sort of books are you into at the moment? Do you make yourself read outside of your comfort zone, or do you remain faithful to your genre of choice?

 

Hello World!

I somehow managed to sleep twelve hours last night. It was ridiculous how tired I was. I can remember while dozing off and on the first few hours that the nerve pain in my arms was intense. It’s usually just in my bad arm, but last night was apparently an exception. My symptoms are never the same from day to day, so each new day is another learning experience.

For those of you that don’t, I got ‘sick’ in October 2011. I was diagnosed with severe Raynaud’s phenomenon and Thoracic Outlet Syndrome. After having surgery and returning to a warm climate, I thought better things were ahead, but I was wrong. I developed nerve problems immediately after the surgery, which got  significantly worse over the summer. Since then, I have received several more diagnoses on top of the existing diseases. Those include Pheripheral Neuropathy, shoulder Bursitis, Snapping Scapula Syndrome, Carpal Tunnel Syndrome (Medial nerve paresthesia), and Cubital Tunnel Syndrome (Ulnar nerve paresthesia). In other words, I’m a hot mess.

My symptoms profoundly affect my life and what I can do on any given day. A lot of days I can’t write or type at all (thank goodness for Apple dictation!). I drop things a lot, and have even accidentally stabbed myself a few times (it’s okay to laugh now :) ). I do what I can with my ‘good’ side, my non-dominant hand, but as you can imagine that only goes so far. One day I might be numb from the shoulder down, the next I might not be able to walk due to the severe Raynaud’s symptoms in my feet. As far as any doctors can see (Neurologist, Orthopedist, Rheumotologist, Vascular Specialist, Physical Doctor, etc.), there’s little to nothing that can be done to help me besides manage the pain and symptoms. I obviously can’t work anymore, and as of the beginning of the year, I no longer have health insurance. It’s a daily battle that I am trying my best to adapt to.

That said, this may now help you understand my falling off the grid. Outside of the Interwebs, I don’t have much of a life. Luckily for me, I have never had an intense need to be entertained by others like some people do. For once, my introversion works in my favor, and my favorite hobbies  (reading, writing, photography, crafting) have always been best served solo. I’m not saying this makes my life any easier, but rather, it makes the silver lining a little brighter.

I can’t do much (if any) crafting or writing anymore, and some days I can’t even hold up my Canon. It sucks. I had to apply for disability since I can’t work anymore, which will be a battle of it’s own in trying to secure. I read that something like 70% of applicants here are denied the first time. Despite my obvious, well documented conditions (and a plethora of additional pre-existing conditions), I am expecting the same response because that’s just how our government operates. Sad, but true. I understand that it is difficult to be legally recognized as disabled because of the insulting number of people who try to defraud the system. I get it. But for those of us who really are fighting a daily battle with our health, it brings about so much additional unnecessary stress to the table. In my mind, it’s simple. I’m a law abiding citizen. I’ve been paying the IRS since before I was twelve, and have worked since I was fourteen. There is nothing I could’ve done to prevent my situation. I am entitled to the program benefits that I’ve been paying for since well before I was old enough to drive. End of story.

In the meantime, I’ve got nowhere to go but here. I’m just so very glad to like my corner of the Interwebs so much :) There’s something in me that felt the need to explain part of my situation to you. Whether you’ve known me in blogland for years or you don’t know the first thing about me, this is an important part of understanding me, and where I’m at in my life right now. It’s my way of saying “Hey, I’m entitled to my feelings towards life (good or bad), and you can either be supportive of me or get lost.” Okay? Good. Now that that’s out of the way, I feel like we can move forward. So, without further delay, and in the words of Brian Kernighan, Hello World! This is me.

Another Year, Another Birthday

Still here. Running a bit behind schedule on Blog Ave, but better late than never I say. The holidays have come and gone, and along with the new year, I find myself another year older.

My New Year’s Eve was fairly low-key, but exactly what I needed. I went out to dinner at Conner’s Steak and Seafood for an early dinner, where I enjoyed the Parmesan Encrusted Alaskan Halibut. It was one of the best Halibut meals I’ve ever had, and I highly recommend it. After finishing off my chocolate mouse cake, we walked over to the theater to take in a movie. I had been wanting to see Silver Linings Playbook and it didn’t disappoint.  If you enjoy quirky, Indie films, it may be up your ally. Bradley Cooper doesn’t look his best in his latest role, but can the man really look bad?

I celebrated my birthday a few days after ringing in the new year, and had an equally nice time. Along with dozens of birthday wishes on FB and Twitter, I also received a few gifts from family and friends. My dear friend Nic sent me the perfect e-gift, a gift card for a place that sells 80s tees to the 80s obsessed folks, like me. After carefully paging through dozens of pages, I finally settled on this grade Gizmo shirt much to my delight. From my family I received even more gift card love for the bookstore and iTunes, another perfect-for-me gift.

Another delicious celebratory dinner was enjoyed on my birthday, this time at DaRuMa, a Japanese steakhouse. As I was still lobstered out from eating mouthfuls at Christmastime, I opted for the shrimp and scallops off the Teppan menu. Spoiling myself yet again with another dessert (chocolate lava cake), I somehow managed to not be too full.

While it’s safe to say between the holidays and my birthday I am celebrated out, I’m very happy to have a new year and fresh start. I have faith that unlike last year, 2013 will be full of goodness. I have a few different creative projects under way to carry me into 2013 and hope to share more about them soon. In the meantime, how did you ring in the new year? Do you have any new projects or resolutions?

 

Christmas Cheer

After a rough year, I’ve been quickly ready to put it behind me, but Santa apparently had other plans. This year I was lucky enough to spend Christmas with family and friends, which can make all the difference. For the first time in awhile, I was able to forget about my health problems long enough to enjoy the moment as it should be, and blur out my pain ever so slightly.

As most holidays go, there was way too much good food involved. I stuffed my face with shrimp, lobster, mashed potatoes, Cesar salad and sweets galore not once, but on three separate occasions. To break bread with family and friends that have been in my life since I was a kid, is truly a blessing. I cherish those moments no matter how bad I may be feeling physically.

At my age, I don’t expect much from others as far as gifts go, though I love to purchase or make gifts for loved ones. It was difficult for me this year to make much of anything between my physical limitations and not being able to work. Luckily, because I’m dogsitting The Westies, I was able to get a few little gifts.

As for receiving gifts, I am tinkled pink just to receive a card! Just the act of knowing someone, somewhere is thinking of you, can make your day. What I hadn’t expected, was to receive so many tangible thoughts from friends and family who are rooting for me from near and far. Here is a peak at some of the thoughtful gifts I was so fortunate to receive from family and friends. Click the image to navigate the slide show.



As you can see, I was very fortunate to receive some really wonderful gifts. I can’t say thank you enough to those who thought of me. A little description of some of the goodies I received include

* Letterset and Yoshi keychain from a dear friend (who knows me too well!)
* Gold Coach Poppy Glam Tote from The Westies (and their master)
* Burt’s Bees skincare products, peppermint bark & slippers (from my sister who clearly was thinking of my poor hands and feet)
* Sweater, tanks, clogs and hoodies
* Necklace, earrings & nail polish
* Maxine daily calendar, B&B Works Vanilla Bean shower gel
* Doxie art print

I also received a dress, pjs, gift card and clutch (not pictured). I jumped in my new jammies the first night, but have yet to wear/use the other items. With my birthday just over a week away, I think I will save the gift card to treat myself to something on the special day :) It also will be the perfect occasion to wear the new dress and carry the clutch too!

How was your Christmas? Were you lucky enough to be among family? Did Santa come to your house?

Tune in Tuesday

Here are my picks from the store today. I feel like it’s been slim pickings all year, but these are a few releases I’ve been waiting for. Since you have to wait an extra week for movie rentals to become available, I didn’t want to include my film choice until this week. Enjoy!

Tunes
Lifehouse – Almeria
Only You’re the One

Where I Come From

And of course if you didn’t already have it from when it was releaseBetween the Raindrops

Film
Ted

Drying Out

For as long as I can remember, I’ve had bad luck. If there’s a 1 in 200 chance of something happening, it usually does. This reminds me of my near brush with death as a child at the local Kmart. Unlike today’s logo, when I was a kid, the Kmart signs were several pieces, one for each letter.
kmart
It was a particularly windy day when my mother, sister and I were walking into the store to do some shopping. Just as I was walking beneath the big letters of the red and blue Kmart sign, the K was lifted from it’s place and came crashing down toward the ground. Lucky for my head, my mother pulled me toward her just in the knick of time. From that day on, Kmart was known as Kame Apart in our family, and I never enjoyed shopping there again.

Kame Apart is just one epic example of my bad luck. A rain cloud has since remained over my head, and this year has certainly been no exception. Because my condition doesn’t allow me maintain a regular job, I’ve been doing a bit of doggy sitting for some family friends. You would think caring for The Westies in their home would be easy-peasy aside from an incident here and there. Think again.

A mere week into their masters’ absence on Saturday night, household disaster strikes. I was sitting in the living room when I heard a rain-like pitter patter. I followed the sound into one of the main floor bedrooms where it was ‘raining’ in the closet. OMG! Why was there water coming out of the light fixture and air vents?! And what’s that – water coming out of the bedroom vent too! Why, oh, why, sweet heaven does this happen on my watch?!

I acted quickly getting buckets and garbage cans underneath the drips, but it’s soo much water! After a complete freak-out, getting the main water turn off outside and calling in the big guns (Dad), I settled down a bit. The leak was eventually traced to a water heater on the upper level of the house, situated directly over the rain closet. Not only was there a hole in it, but my further investigations revealed it had traveled all the way down to the ground floor. Carpets were soaked and the inside of the wall too.

Can you believe the on-island plumbers have NO emergency line?! No way this could wait until Monday! But, nothing could be done. No one could be reached. No plumbers, no owners. Nobody. Things settled down after I got the main water shut off and Dad helped me drain all the faucets. The plumbing was dry except for one flush in each toilet. After digging in the garage storage, I managed to produce a shop vac and large fan which I used to try and dry out the carpets after soaking up water with dozens of towels. I’m so thankful my parents were just down the road and able to help me with that as time sensitive as the issue was.

For the next two days I carried up pool water so I could flush the toilets, and used my emergency hurricane water supply for the Westies, Murph and me. I’m not complaining about that as I know there are millions of people with no running water or toilets post-Sandy and around the world. The thing that made it so bad for me is that it wasn’t my home that got damaged. It was somebody else’s that happened on my watch.

Eventually I did get a hold of the owners, and have had plumbers and contractors here ever since. The service men said I did everything right, and that the damage could’ve been much worse. More importantly, nothing I did caused it and it could not have been prevented. That was load off. As the dogs and I wait for things to dry out, we are thankful to have water in the house again, and more than anything, that I thought to ask the owner where the main water shutoff was located!

[Image source: areavoices.com]